Recommended Reading - Lipedema Treatment Guide Website

Recommended Reading – studies about lipedema and lipoedema

Wounds UK. Best Practice Guidelines: The Management of Lipoedema. London: Wounds UK, 2017. http://www.lipoedema.co.uk/wp-content/uploads/2017/05/WUK_Lipoedema-BPS_Web.pdf

Fetzer A. & Fetzer S. (2016). Lipoedema UK Big Survey 2014 Research Report. Lipoedema UK.

Retrieved from http://www.lipoedema.co.uk/wp-content/uploads/2016/04/UK-Big-Surey-version-web.pdf

Dudek, J.E., Białaszek, W. & Ostaszewski, P. (2015). Quality of life in women with lipoedema: a contextual behavioral approach. Qual Life Res (2015) 25: 401. https://doi.org/10.1007/s11136-015-1080-x Retrieved from: https://www.researchgate.net/profile/Wojciech_Bialaszek/publication/280536237_Quality_of_life_in_women_with_lipoedema_a_contextual_behavioral_approach/links/56bb721108ae47fa39569e5f/Quality-of-life-in-women-with-lipoedema-a-contextual-behavioral-approach.pdf

Herbst K, Mirkovskaya L, Bharhagava A, Chava Y, Te, C. (2015). Lipedema Fat and Signs and Symptoms of Illness, Increase with Advancing Stage. Archives of Medicine 2015 ;7:1-8. Retrieved from: http://www.archivesofmedicine.com/medicine/lipedema-fat-and-signs-and-symptoms-of-illness-increase-with-advancing-stage.pdf

Forner-Cordero I1, Szolnoky G, Forner-Cordero A, Kemény L. (2012). Lipedema: an overview of its clinical manifestations, diagnosis and treatment of the disproportional fatty deposition syndrome – systematic review. Clinical Obesity. 2012 Jun;2(3-4):86-95. doi: 10.1111/j.1758-8111.2012.00045.x. Retrieved from: http://lipedema.eu/zslnokycordero.pdf

Lipedema Project http://lipedemaproject.org/

Fat Disorders Research Society https://www.fatdisorders.org/

About This Site

Hello my name is Kathleen Lisson and I am Board Certified in Therapeutic Massage and Bodywork and is a Certified Lymphedema Therapist. I own Solace Massage and Mindfulness, I have taught classes at IPSB Massage College in San Diego and I am the author of ‘Swollen, Bloated and Puffy, a Manual Lymphatic Drainage Therapist’s Guide to Reducing Swelling in the Face and Body.’

As a Certified Lymphedema Therapist, I have shared information on lipedema, an astoundingly underdiagnosed fat disorder, with individuals and community groups across San Diego and used social media to share tips on calming the pain and inflammation associated with lipedema.

When I provide manual lymphatic drainage massage I get to hear my client’s stories and talk with them about their concerns. Many have recently had surgery or an injury and want to reduce swelling, or are living with lymphedema or lipedema and are looking for a more holistic approach to reducing their symptoms. The comments I hear more than anything else when I talk to people about lipedema is – “I wish someone told me what was happening to my body sooner” and “I wish my doctors knew about lipedema.” I hope you enjoy reading the information I share on this website!

I do not endorse or encourage the use of words “overweight” or “obese”, because they are stigmatize people at the higher end of the weight spectrum. I believe that body sizes are naturally diverse, and that there isn’t anything inherently wrong with having a larger body. I may have used these words in prior materials before recognizing how harmful these words are to larger bodied people. I no longer use them as standalone terms. If I use them, I will clarify them by saying “obesity as defined by BMI.” There will be times when websites or research is shared that uses these words, and I want to be clear that I do not endorse the use of these terms. In addition, I will use the term, “fat”, as a neutral descriptor and not as a pejorative. I do this to normalize it as an adjective, such as, tall, short, or thin. I have adopted these beliefs from the fat acceptance movement which began in 1967. I believe that the more we move towards fat acceptance the better understood fat tissue disorders will be understood and therefore, useful and effective treatment will be more available to people with lipedema.

Lipedema typically affects people with estrogen dominance, so most materials on the topic are geared towards women. This means that the majority of resources leave out trans men, non-binary, genderqueer, and gender non-conforming people and the few cis men who have lipedema. In designing this website, I wanted to be as inclusive of all genders as possible. You will notice that I have done my best to keep descriptors free of gender, unless I am quoting specifics from research. Unfortunately, lipedema research is quite focused on gender. I hope you will find this website a safer resource wherever you are on the gender spectrum.

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